Resources for Professionals

Our team brings together a diverse range of expertise, experiences, and research involvements focusing on advocacy practices and policies that empower and protect every child. In the spirit of reciprocity, our website offers practical resources and tools designed to promote awareness and understanding of children’s rights.

Many of our resources can be applied across settings for anyone working with children and families. So whether you are a researcher, educator, healthcare provider, policy maker, or community leader, we hope to offer tools, guidance, and knowledge that can generate greater advocacy of children’s rights at the heart of your work.

These resources come in many forms - journal articles, assessment tools, videos, webinars and self-reflective case studies etc. We hope these materials will be useful in deepening your knowledge and advancing the cause of children's rights, including their right to social inclusion.

We are grateful for any sharing of resources - such as your knowledge, experiences, and tools. So, send us any materials that we can upload. We also welcome any feedback that can help us address our mission of supporting those who support children’s rights.

Building Friendships Workshop Files:

[To be uploaded in 2025]

For Healthcare Professionals:

  • Bray, L. (2013). Children's rights to participation in healthcare decision-making: A review of the evidence. Health & Social Care in the Community, 21(2), 133-143. https://doi.org/10.1111/j.1365-2524.2012.01096.x ( https://www.isupportchildrensrights.com/)

  • Cibralic, S., Alam, M., Mendoza Diaz, A., Woolfenden, S., Katz, I., Tzioumi, D., Murphy, E., Deering, A., McNamara, L., Raman, S., & Eapen, V. (2022). Utility of screening for adverse childhood experiences (ACE) in children and young people attending clinical and healthcare settings: a systematic review. BMJ Open, 12(8), e060395–e060395.

  • Coyne, I. (2010). Children's participation in consultations and decision-making at health service level: A review of the literature. Journal of Clinical Nursing, 19(17-18), 2415-2425. https://doi.org/10.1111/j.1365-2702.2010.03373.x

  • Curtis, P. (2008). The role of children's rights in healthcare decision-making. Journal of Children's Rights, 16(2), 113-130.

  • Davies, R. (2010). Marking the 50th anniversary of the Platt report: From exclusion to toleration and parental participation in the care of the hospitalized child. Journal of Child Health Care, 14(1), 6-23. https://doi.org/10.1177/1367493509347058

  • Lansdown, G. (2005). The role and impact of the UN Convention on the Rights of the Child in the health care context. Journal of Paediatric Nursing, 20(6), 391-397. https://doi.org/10.1016/j.pedn.2005.05.003

  • Lichtsinn, H., & Goldhagen, J. (2023). Why the USA should ratify the UN Convention on the Rights of the Child. BMJ Paediatrics Open, 7(1).

  • Lundy, L. (2007). Voice is not enough: Conceptualising children’s participation in decision-making. British Education Research Journal, 33(6), 927-942. https://doi.org/10.1080/01411920701657033

  • Koller, D. (2021). Right of children to be heard. BMJ Paediatrics Open, 5(1) http://dx.doi.org/10.1136/bmjpo-2021-001161

  • Koller, D., & Espin, S. (2018). Views of children, parents, and health-care providers on pediatric disclosure of medical errors. Journal of Child Health Care, 22(4), 577-590.

  • Koller, D., Khan, N., & Barrett, S. (2015). Pediatric perspectives on diabetes self-care: a process of achieving acceptance. Qualitative Health Research, 25(2), 264-275.

  • Koller, D. (2017). ‘Kids need to talk too’: inclusive practices for children's healthcare education and participation. Journal of Clinical Nursing, 26(17-18), 2657-2668.  

  • Koller, D., & Wheelwright, D. (2024, in press). The future of child life assessment is now. In K. Cantrell, C. Sisk & B. Wittenberg (Eds). Child Life Assessment.

  • Ramchandani, P. (2004). Children's rights and healthcare decisions: Exploring the role of participation. Child Health Journal, 8(1), 34-45.

  • Spencer, N., Colomer, C., Alperstein, G., Bouvier, P., Colomer, J., Duperrex, O., Gokcay, G., Julien, G., Kohler, L., Lindström, B., Macfarlane, A., Mercer, R., Panagiotopoulos, T., & Schulpen, T. (2005). Social paediatrics. Journal of Epidemiology and Community Health, 59(2), 106–108. 

  • Spencer, N. J. (2000). Poverty and Child Health. Radcliffe Medical Press.

  • Spencer, N. J. (2008). European Society for Social Pediatrics and Child Health (ESSOP) Position Statement. Child: Care, Health and Development, 34(5), 631-634.

  • Spencer, N., Raman, S., O'Hare, B., & Tamburlini, G. (2019). Addressing inequities in child health and development: Towards social justice. BMJ Paediatrics Open, 3(1).

  • Whitney, R., & Theeke, E. (2020). Adverse Childhood Experience (ACE) Prevalence and Severity of Mental, Behavioral, and Developmental Disorders: National Survey of Child Health. The American Journal of Occupational Therapy, 74(S1).

  • Williams, A. (2018). Children’s autonomy and participation in medical decision-making: Navigating ethical considerations. Bioethics, 32(6), 377-385. https://doi.org/10.1111/bioe.12407

‘My Diabetes Playbox’ ©

What is the ‘My Diabetes Playbox’?

‘My Diabetes Playbox’ is a new resource and psycho-educational tool designed to address the developmental needs of young children with diabetes between the ages of four and eight. The playbox is a portable case filled with playful activities and an information book on diabetes. The format offers play-based learning and an interactive experience for the child, family and health care providers. The purpose of the playbox is to:  1) educate young children about diabetes, 2) promote self-care and 3) facilitate coping and emotional expression.

Why was this tool developed?

This tool was developed because research has shown that engaging children in managing their disease needs to begin at an early age. For children with diabetes, active engagement in self-care requires an accurate understanding of their disease. The creator of the toolbox (Koller et al., 2015), found that young children with Type 1 diabetes have very limited knowledge and often hold misconceptions about diabetes. These findings have implications for how children with diabetes can engage in self-care. Currently, appropriate educational resources for young children are lacking and often fail to meet their specific learning needs.

How can I get a playbox?

We are currently working to provide select hospitals and relevant organizations with copies of the playbox. Please contact us via allkidsincluded@gmail.com if you are interested in obtaining one or multiple playboxes.

 

For Educators and Teachers:

  • Beneke, S., & Ostrosky, M. M. (2015). Effects of the Project Approach on Preschoolers with Diverse Abilities. Infants and Young Children, 28(4), 355–369. https://doi.org/10.1097/IYC.0000000000000045

  • Beneke, M. R., & Park, C. C. (2019). Introduction to the special issue: Antibias curriculum and critical praxis to advance social justice in inclusive early childhood education. Young Exceptional Children, 22(2), 55-61. https://doi.org/10.1177/1096250619833337

  • Blaisdell, C. (2017). Listening to young children: meaningful participation in early childhood settings. Centre for Research on Families and Relationships, University of Edinburgh, UK.

  • College of Early Childhood Educators. (2019). Practice guideline: Inclusion of children with disabilities.https://www.college-ece.ca/wp-content/uploads/2021/10/Practice_Guideline_Inclusion-1.pdf

  • College of Early Childhood Educators. (2022a). Practice note: Beliefs and biases. https://www.college-ece.ca/wp-content/uploads/2022/03/Practice_Note_Beliefs_and_Biases_EN_Final.pdf

  • College of Early Childhood Educators. (2022b). Reflection guide for practice note: Beliefs and biases. https://www.college-ece.ca/wp-content/uploads/2022/03/Reflection_Guide_for_PN_Beliefs_and_Biases_EN_Final.pdf

  • Derman-Sparks, L., & Edwards, J. O. (2019). Understanding Anti-Bias Education: Bringing the Four Core Goals to Every Facet of Your Curriculum. YC Young Children, 74(5), 6–13.

  • Faber, J., & King, J. (2017). Tools for Handling Emotions…What’s all the Fuss about Feelings? In Faber, J., &

  • King, J. How to Talk so Little Kids Will Listen: A survival guide to life with children ages 2-7. (pp. 3-42). New York, NY: Scribner.

  • Lundqvist, J., Westling Allodi, M., & Siljehag, E. (2018). Values and Needs of Children With and Without Special Educational Needs in Early School Years: A Study of Young Children’s Views on What Matters to Them. Scandinavian Journal of Educational Research, 63(6), 951–967. https://doi.org/10.1080/00313831.2018.1466360

  • McKinney, F. E. (Director). (2021). Reflecting on Anti-bias Education in Action: The Early Years [Film]. Brave Sprout Productions

  • Ministry of Education. How does learning happen? Ontario’s pedagogy for the early years. (2014). Ontario.

For All Practitioners

Reflective Practice: Why is it important?

 
 
  • Baird, M. A., & Winter, J. (2005). Reflection, practice and clinical education. In M. Rose, D. Best, & J. Higgs (Eds.), Transforming Practice through Clinical Education, Professional Supervision and Mentoring (1st ed., pp. 143 - 159). Elsevier.

  • Delany, C., & Watkin, D. (2009). A study of critical reflection in health professional education: 'learning where others are coming from'. Advances in Health Sciences Education: Theory and Practice, 14(3), 411–429. https://doi.org/10.1007/s10459-008-9128-0

  • Naumeri, F. (2023). Reflective Practice and Factors Affecting it: Perceptions of Pediatric Surgery Residents. Annals of King Edward Medical University, 28(4), 417-422. https://doi.org/10.21649/akemu.v28i4.5250

  • Rosen, McCall & Goodkind (2017) Teaching critical self-reflection through the lens of cultural humility: an assignment in a social work diversity course, Social Work Education, 36:3, 289-298, DOI: 10.1080/02615479.2017.1287260


Doing Research with Children

Jörgensen, E., Koller, D., Raman, S., Olatunya, O., Asemota, O., Ekpenyong, BN., Gunnlaugsson, G., Okolo, A. (2022). The voices of children and young people during COVID-19: A critical review of methods. Acta Paediatr. 2022 May 24. http://doi.irg/10.1111/apa.16422

Koller, D., & San Juan, V. (2015). Play-based interview methods for exploring young children’s perspectives on inclusion. International Journal of Qualitative Studies in Education, 28(5), 610- 631. http://doi/10.1080/09518398.2014.916434

Underwood, K., Chan, C., Koller, D., & Valeo, A. (2015). Understanding young Children’s capabilities: Approaches to interviews with young children experiencing disability. Child Care in Practice, 21(3), 220-237. doi:10.1080/13575279.2015.103724

Assessment Tools

Child Rights Impact Assessment (CRIA) tool:

https://rightsofchildren.ca/our-work/child-rights-impact-assessment/#:~:text=A%20Child%20Rights%20Impact%20Assessment,of%20children%20or%20young%20people.

A Child Rights Impact Assessment (CRIA) is a tool that can be used to examine the potential impacts of proposed legislation, policies, budget decisions, programs, and services on the rights of children or young people. It is seen as a critical tool for the promotion, protection, and monitoring of children’s rights under the United Nations Convention on the Rights of the Child (UNCRC).

Fear of Hospitalization Rating Instrument
Jankovic, S. M., Antonijevic, G. V., Vasic, I. R., Zivkovic‐Radojevic, M. N., Mirkovic, S. N., Nikolic, B. V., ... & Radonjic, V. (2018). A rating instrument for fear of hospitalisation. Journal of clinical nursing, 27(7-8), 1431-1439.

This rating is instrument designed to assess fear of hospitalization in patients. This 16-item rating instrument allows for a comprehensive assessment of various aspects related to patients' fears and anxieties about being hospitalized. In turn, this can help healthcare providers identify and address patients' anxieties related to hospital stays, ultimately improving patient care and outcomes.

The Faces Pain Scale

Bieri, D., Reeve, R. A., Champion, G. D., Addicoat, L., & Ziegler, J. B. (1990). The Faces Pain Scale for the self-assessment of the severity of pain experienced by children: development, initial validation, and preliminary investigation for ratio scale properties. Pain, 41(2), 139-150.

The Faces Pain Scale is a tool designed for children to self-assess their pain intensity. The scale allows children to point to facial expressions to help children communicate their pain levels to health care providers.

 

The Council of Europe Child Participation Assessment Tool (2012): https://rm.coe.int/CoERMPublicCommonSearchServices/DisplayDCTMContent?documentId=09000016806482d9

This Assessment Tool provides specific and measurable indicators with which States can begin to measure progress in implementing Recommendation CM/Rec(2012)2 of the Committee of Ministers to member States on the participation of children and young people under the age of 18.

The Coping Health Inventory for Parents

McCubbin, H.I., McCubbin, M.A., Patterson, J.M., Cauble, A.E., Wilson, L.R. & Warwick, W. (1983). CHIP-Coping Health Inventory for Parents: An Assessment of Parental Coping Patterns in the Care of the Chronically Ill Child. Journal of Marriage and the Family, 45(2), 359-370. doi: 10.2307/351514

The Coping Health Inventory for Parents (CHIP) was developed to assess parents' appraisal of their coping responses to the management of family life when they have a child member who is seriously and/or chronically ill.

The McMaster Model of Family Functioning

Epstein, N. B., Bishop, D. S., & Levin, S. (1978). The McMaster model of family functioning. Journal of Marital and Family therapy4(4), 19-31.

The McMaster model of family functioning is a framework designed to assess and improve family dynamics and interactions. The model emphasizes the importance of how families operate as systems, focusing on various dimensions such as problem-solving, communication, roles, and emotional responsiveness.

 The framework is premised on the idea that effective family functioning is crucial for the well-being of individual members and propose that therapy can help families improve their functioning by addressing these areas.

Michael Guralnick’s scholarship:

  • Guralnick, M. J. (2011). Why early intervention works: A systems perspective. Infants and Young Children, 24(1), 6–28. https://doi.org/10.1097/IYC.0b013e3182002cfe

  • Guralnick, M. J. (1990). Social competence and early intervention. Journal of Early Intervention, 14(1), 3–14. https://doi.org/10.1177/105381519001400101

  • Guralnick, M. J. (1999a). Family and child influences on the peer-related social competence of young children with developmental delays. Mental Retardation and Developmental Disabilities Research Reviews, 5(1), 21-29. https://psycnet.apa.org/doi/10.1002/(SICI)1098-2779(1999)5:1%3C21::AID-MRDD3%3E3.0.CO; 2-O

  • Guralnick, M. J., Connor, R. T., Hammond, M. A., Gottman, J. M., & Kinnish, K. (1996). The peer relations of preschool children with communication disorders. Child Development, 67(2), 471-489. https://psycnet.apa.org/doi/10.2307/1131827

  • Guralnick, M. J. (1999b). The nature and meaning of social integration for young children with mild developmental delays in inclusive settings. Journal of Early Intervention, 22(1), 70–86. https://doi.org/10.1177/105381519902200107    


Case Studies

Below, we offer case studies that are based on our practices in the field of healthcare and education. We hope that these case studies spark thoughtful discussions and reflections about inclusion in your practice. Please feel free to download or engage with the scenarios and use them in your work.

Health care

Case Study #1:
Name: Alex
Age: 12 years old

Alex is 12-year-old boy who was assigned female at birth but now identifies as male. Alex was diagnosed with Type 1 diabetes and requires frequent hospital visits to see his endocrinologist to assess his insulin administration to manage his diabetes. While Alex is generally coping well with his diabetes care, he has encountered instances where health care team members misgender him by not using his preferred name and pronouns. This has caused him to feel frustrated, isolated, and misunderstood. This has affected not only his emotional wellbeing, but also his level of comfort and trust in the health care team and the hospital.

While Alex’s parents are supportive and have been proactive in seeking care, they have also found it challenging in ensuring that Alex’s gender identity is respected and understood by the healthcare team. They are also worried about the privacy of Alex’s gender identity and how it is communicated within the healthcare facility.

Questions for reflection:

  • Which actions could health care team members take to foster more inclusive practices in the healthcare setting?

  • How might it feel for Alex when healthcare professionals misgender him?

  • What entrenched personal biases or assumptions might be contributing to the misgendering of Alex, and how can individuals challenge these biases?

  • -Which actions could the healthcare institution take to ensure that all patients feel respected and supported  (e.g., comprehensive training and redevelopment/revisiting of protocols)?

Case Study #2:
Name: Elizabeth
Age: 8 years old

Elizabeth is an 8-year-old black girl who has epilepsy and a sensory processing disorder (SPD). SPD affects her ability to respond to and cope with sensory stimuli such as noise, light, and touch. Elizabeth requires regular visits to the hospital for various treatments and assessments related to her epilepsy, as well as her SPD. However, the sensory environment of the hospital has posed significant challenges for her.

The hospital environment is often noisy, busy, and has a constant hum of machinery, frequent announcements, and other noises such as call bells and alarms. The lighting is harsh and there are many bright and flashing lights with little to no options to control the lighting.

When Elizabeth has to undergo procedures such as bloodwork, she becomes especially overwhelmed by the busy hospital decor (e.g., paintings and colors on the walls). Receiving physical contact from healthcare providers who are unfamiliar to her and being exposed to unfamiliar textures is also overwhelming for Elizabeth. These sensory inputs can cause her significant stress, leading to heightened anxiety and difficulty coping with necessary medical procedures.

Elizabeth’s parents have tried to prepare her for these visits and manage her sensory sensitivities as best as they can, but they find it challenging to address the sensory overload that comes with the hospital environment because they feel like they cannot change it. They are concerned about how these sensory challenges affect Elizabeth’s comfort and cooperation during medical visits and are seeking ways to make her experience more manageable and supportive.

Questions for reflection:

  • What specific strategies can healthcare team members implement to create a more sensory-friendly environment for patients with sensory processing challenges?

  • How can you, as a healthcare provider, empathize with Elizabeth’s experience to better support her during hospital visits?

  • Which entrenched attitudes, biases or assumptions may be at play in shaping Elizabeth’s experience?

  • What steps can the healthcare institution take to modify the environment and practices to be more accommodating for patients with sensory processing disorders (e.g., noise reduction, softer lighting, sensory-friendly spaces)?


Early Childhood Education

Case Study #1:
Name: Liam
Age:3.5 years

Liam is a 3.5 year-old boy who enjoys spending time in the dramatic play centre in his preschool classroom. He can be frequently found during free play time in the dramatic centre, engaging in various pretend play scenarios. Lately, Liam has been choosing to wear the pink dress and heeled shoes while pushing the baby stroller with his baby inside. Liam has been observed caring for the baby, feeding it and offering it a bottle and changing its diaper. One evening during pick-up time, Liam was wearing the dress and pushing the stroller when his father arrived. His father smiled at Liam, said a hearty hello to his son, and approached one of the educators and asked, “Why is Liam pushing the stroller? Boys should not be wearing dresses and pushing strollers. Does he do this often?”

Questions for reflection:

  • How can we acknowledge Liam’s father’s feelings and concerns while reinforcing a positive and inclusive approach to gender expression for all children?

  • How can we engage Liam’s father in a conversation about Liam’s play to understand his perspective better and provide reassurance and support for Liam’s explorations?

  • How can we ensure that Liam (and all children) feels validated and supported in his interests while navigating potential external pressures or misunderstandings?

Case Study #2:
Name: Emma
Age: 4 years

Emma is a 4-year-old girl at a childcare centre who often plays alone. She frequently wanders around the room, observing other children engaged in various activities but seldom initiates or joins their play. She tends to stay close to the children playing. Educators have noticed that while Emma appears interested in the group activities, she does not take steps to engage with the other children. This pattern of behavior raises concerns about Emma’s social development and inclusion.

Questions for reflection:

  • What might be the underlying reasons for Emma’s reluctance to join group play? Could there be social, emotional, or developmental factors at play?

  • How can we assess whether Emma’s behaviour is a sign of shyness, social anxiety, or a preference for solitary play?

  • Are there aspects of our current practices or environment that may inadvertently discourage Emma from participating in group play?

  • How can we review and adjust our approach to ensure we are supporting all children in developing their social skills effectively?

  • What role should staff play in facilitating or modeling social interactions for Emma? How can we support her in finding her own way to engage?

  • How can we involve Emma’s family in understanding and supporting her social development? What insights might they provide about her behaviour at home or in other settings?